Living with Cushing’s Disease

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The story of Esther

I was 12 when I started to experience excruciating menstrual pains whereby I had to  take a day off from school each month. My face and neck would be covered with severe rashes that gave off a burning sensation. I felt like I was on fire, and would rock from side to side for hours to relieve the pain.      

I also suffered from severe hyperhidrosis (excessive sweating) from my scalp and face. I would drip endless buckets of sweat and there wasn’t a reasonable solution to eliminate or control it. I carried on, trying to live a normal, vibrant social and working life. I was able to hide the discomfort of sudden hot, sweaty flushes. I tried hard to appreciate quality time spent with my loved ones, and taking pride in being known as the larger than life character, the soul of the party.

Bron: rarediseaseday.org