Life is a Rollarcoaster – Perspective of a Cushing’s patient.

Today is Cushing’s Disease Awareness Day

And here’s why it’s important to me.

Cushing disease is a condition in which the pituitary gland releases too much adrenocorticotropic hormone (ACTH). It is caused from a tumour or excess growth (hyperplasia) of the pituitary gland

Only 2 – 3 people per million are identified as having the disease each year – those are the ones that are identified. Many additional cases might go undiagnosed because symptoms are mistakenly attributed to other conditions such as type 2 diabetes, osteoporosis, insulin resistance, polycystic ovaries

Because of the lack of awareness of the condition, the path to diagnosis is incredibly long and the journey lonely and challenging, for patients, and their carers – for me this journey to diagnosis has been a rollercoaster of over 20 years.

Bron: Australian Piutary Foundation