First-ever UN Resolution on persons with rare diseases paves the way for Europe’s Action Plan for Rare Diseases

“If there is only one patient suffering from a disease that still means we all are suffering from it. Let’s invest in understanding ourselves better and beat rare diseases.” – Max, Netherlands

we did it!

On the 16th of December, the United Nations General Assembly adopted the first-ever Resolution on ‘Addressing the challenges of persons living with a rare disease and their families.’ This milestone is a manifestation of the genuine wish of the 300 million people living with a rare disease globally to be recognised, and a formal commitment of the 193 UN Member States, including the 27 European Union Member States, to support rare disease policies to promote and protect the rights of everyone living with a rare disease and their families.

Notably, the European Union Member States, all of which voted in favour of the Resolution and with 11 acting as co-sponsors, have acknowledged the existing barriers and challenges the 30 million people living with a rare disease in Europe face in their daily life and expressed their political determination and firm commitment to continue to

Bron: Eurocordis